The California Interagency Data Collaboration
Funding Agency: Foundation Consortium for School-Linked Services
Staff: Norm Constantine (project director), Julie Aronson, Shannon Wilber (Youth Law Center)
This project was a collaboration between WestEd, Walter R. McDonald and Associates, UCSF, and Philiber Research Associates. The mission of the California Interagency Data Collaboration (CIDC) was to improve the quality and efficiency of integrated children's and family services in California by creating an integrated information infrastructure to support cross-agency collaboration at both local and state levels. Its objectives were (1) to reduce the data collection burden on case managers at California Healthy Start Program sites and other interagency services collaboratives, and (2) to facilitate local use of data that are collected to meet non-local mandates. These objectives were addressed through the consensus development of standards and procedures for interagency data sharing and data transmission, functional specification for case management information systems, and confidentiality standards for the management and exchange of client data across agencies. The CIDC was funded by a consortium of 23 California philanthropic foundations in partnership with the California Department of Health Services, the California Department of Education, and the California Governor's Office. This project built on the previous work of the national ANSI SPEEDE/ExPRESS groups, the California Student Information System, the Family Health Outcomes Project, and the Youth Law Center. The CIDC consensus building process involved broad participation across state and local public agencies, Healthy Start sites, and software vendors.
Common definitions and coding structures were produced for three levels of core data elements: (1) core linkage data, (2) minimal and essential case management data, and (3) other core case management data. A subset of these data standards has been adopted as formal policy by the California Department of Health Services across all health services programs. In addition, 43 standards for case management information systems also were developed across the following seven functional categories: system functionality, system design, user interface, system security, management reports, interconnectivity, and vendor services, agreements, and training. Finally, 23 standards for protecting the confidentiality of client data were developed across the four categories of basic principles, permissible disclosures, procedures to protect confidentiality, and automated systems. Phase 2 of the CIDC involved further development of the Level 3 data standards and standards for measurement of service delivery and program outcomes, development of site and vendor support materials and a training conference, and field studies of existing collaboratives.
For more information, download our National Center for Health Statistics paper on the CIDC (pdf file).